AIDS/HIV: Home

A moving collection of firsthand accounts of the HIV epidemic. Tremendous strides have been made in the prevention and treatment of HIV since the disease first appeared in the 1980s. But because many of the people who studied and battled the virus in those early days are now gone, firsthand accounts are at risk of being lost. In HIV Pioneers, Wendee M. Wechsberg collects 29 "first stories" from the outset of the AIDS epidemic. These moving personal narratives and critical historical essays not only shed light on the experiences of global health pioneers, prominent scientists, and HIV survivors, but also preserve valuable lessons for managing the risk and impact of future epidemics. With unprecedented access to many key actors in the fight against AIDS and HIV, Wechsberg brings to life the harrowing reality of those early days of the epidemic. The book captures the experiences of those still working diligently and innovatively in the field, elevating the voices of doctors, scientists, and government bureaucrats alongside those of survivors and their loved ones. Focusing on the impact that the epidemic had on careers, pieces also show how governments responded to HIV, how research agendas were developed, and how AIDS service agencies and case management evolved. Illuminating the multiple facets of the HIV epidemic, both in the United States and across the globe, HIV Pioneers is a touching and inspirational look into the ongoing fight against HIV. Contributors: Quarraisha Abdool Karim, Salim S. Abdool Karim, Lynda Arnold, Anne Jeanene Bengoa, Robert E. Booth, Barry S. Brown, Thomas Coates, Francine Cournos, James W. Curran, Don C. Des Jarlais, Jeffrey D. Fisher, William A. Fisher, Samuel R. Friedman, Robert C. Gallo, Mary Guinan, Gibbie Harris, Warren W. Hewitt Jr., Susan M. Kegeles, Rayford Kytle, Bishop Stacey S. Latimer, Robert Love, Duane C. McBride, Clyde B. McCoy, Carmen Morris, Willo Pequegnat, Mary Jane Rotheram-Borus, Jeffrey Samet, David Serwadda, Lorraine Sherr, James L. Sorensen, Jack B. Stein, Charles van der Horst, Wendee M. Wechsberg, Wayne Wiebel, William A. Zule

In just six years, ACT UP, New York, a broad and unlikely coalition of activists from all races, genders, sexualities, and backgrounds, changed the world. Armed with rancor, desperation, intelligence, and creativity, it took on the AIDS crisis with an indefatigable, ingenious, and multifaceted attack on the corporations, institutions, governments, and individuals who stood in the way of AIDS treatment for all. They stormed the FDA and NIH in Washington, D.C., and started needle exchange programs in New York; they took over Grand Central Terminal and fought to change the legal definition of AIDS to include women; they transformed the American insurance industry, weaponized art and advertising to push their agenda, and battled--and beat--The New York Times, the Catholic Church, and the pharmaceutical industry. Their activism, in its complex and intersectional power, transformed the lives of people with AIDS and the bigoted society that had abandoned them. Based on more than two hundred interviews with ACT UP members and rich with lessons for today's activists, Let the Record Show is a revelatory exploration--and long-overdue reassessment--of the coalition's inner workings, conflicts, achievements, and ultimate fracture. Sarah Schulman, one of the most revered queer writers and thinkers of her generation, explores the how and the why, examining, with her characteristic rigor and bite, how a group of desperate outcasts changed America forever, and in the process created a livable future for generations of people across the world.

From the very beginning of the epidemic, AIDS was linked to punishment. Calls to punish people living with HIV--mostly stigmatized minorities--began before doctors had even settled on a name for the disease. Punishing Disease looks at how HIV was transformed from sickness to badness under the criminal law and investigates the consequences of inflicting penalties on people living with disease. Now that the door to criminalizing sickness is open, what other ailments will follow? With moves in state legislatures to extend HIV-specific criminal laws to include diseases such as hepatitis and meningitis, the question is more than academic.

In the face of life-threatening news, how does our view of life change--and what do we do it transform it? Remaking a Life uses the HIV/AIDS epidemic as a lens to understand how women generate radical improvements in their social well being in the face of social stigma and economic disadvantage. Drawing on interviews with nationally recognized AIDS activists as well as over one hundred Chicago-based women living with HIV/AIDS, Celeste Watkins-Hayes takes readers on an uplifting journey through women's transformative projects, a multidimensional process in which women shift their approach to their physical, social, economic, and political survival, thereby changing their viewpoint of "dying from" AIDS to "living with" it. With an eye towards improving the lives of women, Remaking a Life provides techniques to encourage private, nonprofit, and government agencies to successfully collaborate, and shares policy ideas with the hope of alleviating the injuries of inequality faced by those living with HIV/AIDS everyday.